Collaborating with Patient Advocacy Groups to Educate the Marketplace
Table of Contents
Universe of Learning: Benchmark Class of Research Participants and Their Demographics 4
Key Insights, Findings & Observations 10
Understanding the Advocacy Landscape: How to Evaluate the Broad Spectrum of Advocacy Groups and Find Common Ground with the Best Allies 16
Managing Advocacy Relationships: Process Insights to Help
Build Lasting Relationships 34
Managing Relationships with Hostile Groups: How to Find Common
Ground and Avoid Making Enemies 45
Advocacy Communication Practices: Effective Approaches to
Communicating & Educating Patient Advocacy Groups 61
Structuring High Performance Pharma Advocacy Groups:
Advocacy Structures are rapidly Evolving 74
Critical Competencies for Advocacy Liaisons: Community Liaisons have
Critical Skill Sets 82
Advocacy Tools: How to Use Tools to Manage Your Relationships 94
New Technologies: Emerging Technologies Create New Channels &
Opportunities to Educate Patient Groups 102
Advocacy & Product Launch: Educating the Market is a Critical First Step 107
Current Trends & Future Directions in Patient Advocacy 111
Painful Lessons Learned, Pitfalls & Successes 116
About Best Practices, LLC 124
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List of Charts & Exhibits
- Tactics to Minimize Opposition from Patient Advocacy/Special Interest Groups
- Critical Considerations when Managing Advocacy Collaborations regarding Controversial Therapies
- Effective Market Education Approaches for Controversial Conditions
- Common Biopharma Patient Advocacy Group Structures
- Effective Communication Approaches for Advocacy Interactions with Pharma
- Effectiveness Measures for Pharma Advocacy Group Activities and Relationships
- Number of FTEs Dedicated to Patient Advocacy Activities
- Methods for Prioritizing Objectives When Advocacy Groups work with Multiple Brands
- Rating Importance of Patient Advocacy Collaborations at Different Lifecycle Stages
- Rating Importance of Education/Program Support Types by Key Lifecycle Stages
- Best Approaches to Seed an Early Relationship with Patient Advocacy Groups
- Rating Importance of Platforms for Delivering Education to Patient Advocacy Groups
- Best Approaches to Deploying Advocacy Grants for Early-Stage Support with Groups
- Marketplace Factors to be Considered Regarding Patient Advocacy Issues
- Imporatant Issues Facing Patient Advocacy over Next Three Years
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