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Transparency and Authenticity is Key to a Successful Pharmaceutical Industry Collaboration with Patient Advocacy Groups

CHAPEL HILL, N.C., June 9, 2017 /PRNewswire/ -- Pharmaceutical industry collaborations with patient advocacy groups are an important way for helping brands connect with patients throughout the product lifecycle.

In order to identify effective practices in patient advocacy group collaboration and relationship management, Best Practices, LLC undertook benchmarking research. This report examines the winning strategies, best practices, preferred structures, responsibilities, collaboration approaches, resource levels, emerging trends and challenges in patient advocacy.

In the study, participants identified pre-launch collaborations as the most important period, followed by launch. A majority of participants identified both periods as highly important for advocacy group collaborations. In addition, transparency and authenticity is the key to effectively coordinate relationships with patient advocacy groups, according to 67 percent of the study participants.

The new study is the latest in a series of advocacy studies performed by Best Practices, LLC and it demonstrates that pharma is increasingly relying on collaborations with advocacy groups to reach patients:

  • In 2014, the number of advocacy groups supported by benchmark partners averaged 7.6 and in 2015, it was 10.6 groups. In 2016, companies expect to support about 15 advocacy groups, up by 40% over 2015, according to the new study.

The report, Collaborating with Patient Advocacy Groups to Educate the Marketplace, contains an array of benchmarks regarding patient advocacy structure, resources and activities. The 79-page report contains 270 metrics and 30 narratives to help inform advocacy leaders attempting to align their structure, resources and strategies with corporate goals and external partners' needs.

Key Topics of this report include:

  • Understanding the "advocacy" landscape
  • Effective practices for working with potentially hostile patient advocacy groups
  • Advocacy structures that work best
  • Advocacy tools
  • Critical competencies of Advocacy professionals
  • Advocacy Lessons learned from socially sensitive or stigmatized disease areas
  • Profiling Advocacy Group experience & expertise

Executives and managers involved in patient advocacy can use this research to compare their structure, resources, responsibilities and strategies with those of leading organizations.

Download a complimentary report summary at:

For this study, 24 leaders from 21 top biopharmaceutical companies were engaged through a benchmarking survey. In-depth interviews were conducted to gather more detailed information pertinent to this study.

For more information on this study or other recent primary research studies, contact us at 919.403.0251 or at


Best Practices, LLC is a leading benchmarking, consulting and advisory services firm serving biopharmaceutical and medical device companies worldwide. Best Practices, LLC's clients include all the top 10 and 48 of the top 50 global healthcare companies. The firm conducts primary research and consulting using its comprehensive proprietary benchmarking tools and analysis. The operational insights, findings and analysis form the basis for our Benchmarking Reports, databases and advisory services to support executives in commercial and R&D operations.

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