Medical Affairs and CNS Patient Engagement: Amplifying the Patient Voice and Patient Support Strategies

With CNS patients’ experiences often shaped by both chronic and acute phases of their conditions, engaging them through the right support strategies is essential. Medical Affairs groups play a critical role in ensuring the patient voice is not only heard but actively integrated into every stage of development.

Best Practices, LLC conducted this study to explore how Medical Affairs can integrate patient support strategies at both early and late stages of development in the CNS space. This research covers strategies to ensure the patient voice is represented and highlights key opportunities for collaboration with patient advocacy groups.

Data in this study are segmented by respondents’ description of their medical team’s effectiveness with patient engagement – highly effective vs. less effective.

KEY TOPICS

• CNS Patient Engagement Overview
• Strategies to Reflect the Central Nervous System Patient Voice
• Early and Late-Stage CNS Patient Support
• Working with CNS Patient Advocacy Groups

• Effectiveness of Medical Affairs groups in representing the CNS patient voice
• Effectiveness of tools and strategies used by Medical Affairs to collect the CNS patient voice during the pre-launch and launch phases
• Impact of various approaches in supporting CNS patients at early and late stages of their condition
• Medical Affairs groups' working relationships with CNS patient advocacy organizations

• Early-Stage CNS Patient Support: Partnering with advocacy groups and disease awareness education are the most effective early-stage support strategies.

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