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Products & Services Medical Affairs Patient Advocacy

Collaborating with Patient Advocacy Groups: Regulatory Impact, Technology Use & Future Trends

ID: 5428


Features:

30 Info Graphics

7 Data Graphics

50+ Metrics

16 Narratives

18 Best Practices


Pages/Slides: 48


Published: 2016


Delivery Format: Online PDF Document


 

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  • STUDY OVERVIEW
  • BENCHMARK CLASS
  • SPECIAL OFFER
Non-members: Click here to review a complimentary excerpt from
Collaborating with Patient Advocacy Groups: Regulatory Impact, Technology Use & Future Trends”

STUDY OVERVIEW

Pharmaceutical organizations seek to collaborate with key patient advocacy groups to educate the public about new treatments and scientific advancements. At the same time, it is vital for organizations to be compliant with the ever-growing regulations in the industry.

Best Practices, LLC undertook this benchmarking research to identify current and emerging trends in patient advocacy. In particular, this study examines regulatory impact, use of technology, adherence to ethical boundaries and lessons learned in patient advocacy.

KEY TOPICS

Understanding the “Advocacy” Landscape
Current Trends & Directions Surrounding Patient Advocacy
Impact of New Regulations & Strategies to Address the Impact
Use of Technology in Patient Education & Future Opportunities
Ethical Boundaries Adhered
Advocacy Lessons Learned from Socially Sensitive or Stigmatized Disease Areas
Top Success Stories About Relationships with Patient Advocacy Groups

KEY METRICS

Current Issues Surrounding Patient Advocacy
Funding of Clinical Trial Studies by Advocacy Groups
Impact of New Regulations on Patient Advocacy Strategies and Tactics to Address the Impact
Importance of Different Platforms in Delivering Patient Education

SAMPLE KEY FINDINGS

New Technologies For Patient Education: Video, social networks and internet tools all create new channels and opportunities for internal and external advocacy groups to educate patients. Field research reveals that social networking groups and videos are seen as the most effective technology tools for both disease and therapy education. Most respondents saw some value in all the different tools used to educate the public on either disorders or therapies that carry some social stigma.


METHODOLOGY

Best Practices, LLC engaged 24 leaders from 21 top bio-pharmaceutical companies through a benchmarking survey. In-depth interviews were conducted to gather more detailed information pertinent to this study. More than 50% of participants are at the director/ senior director level. More than 70% of participants are from the United States.


Industries Profiled:
Biopharmaceutical; Pharmaceutical; Medical; Manufacturing; Biotech; Consumer Products; Diagnostic; Medical Device; Research; Health Care


Companies Profiled:
Alnylam Pharmaceuticals; Astellas; Baldwin Area Medical Center; Bayer; Boehringer Ingelheim; Covance; Forum Pharmaceuticals; Genzyme; Horizon Pharma; Johnson & Johnson; Lundbeck; Mallinckrodt; Natera; Novartis; Parkway Pantai; Pfizer; Pharmacyclics; Spark Therapeutics; Teva Pharmaceutical Industries Ltd; UCB Pharma; Zogenix


If you purchase Best Practice Database document(s), you will have 30 days from the date of purchase to apply some or all of the cost of the document(s) toward the cost of a Full Access Individual, Pharma, Group or University Membership. Write us at DatabaseTeam@bestpracticesllc.com or call David Guinn at 919-767-9179 if you have any questions.